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Nothing to complain about? : residents’ and relatives’ viewson a 'good life' and ethical challenges in nursing homes

机译:没什么可抱怨的? :居民和亲属对养老院的“美好生活”和道德挑战的看法

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摘要

Background: Nursing home residents are a vulnerable population. Most of them suffer from multimorbidity,while many have cognitive impairment or dementia and need care around the clock. Several ethicalchallenges in nursing homes have been described in the scientific literature. Most studies have used staffmembers as informants, some have focused on the relatives’ view, but substantial knowledge about theresidents’ perspective is lacking.Objective: To study what nursing home residents and their relatives perceive as ethical challenges inNorwegian nursing homes.Research design: A qualitative design with in-depth interviews with nursing home residents, and focusgroupinterviews with relatives of nursing home residents. The digitally recorded interviews were transcribedverbatim. Analysis was based on Interpretive Description.Participants and research context: A total of 25 nursing home residents from nine nursing homes inNorway, and 18 relatives of nursing home residents from three of these nursing homes.Ethical considerations: This study was reported to and approved by the Regional Ethics Committee inOslo, Norway.Findings and discussion: The main ethical challenges in Norwegian nursing homes from the residents’and relatives’ perspective were as follows: (a) acceptance and adaptation, (b) well-being and a good life,(c) autonomy and self-determination, and (d) lack of resources. The relationship with the staff was of outmostimportance and was experienced as both rewarding and problematic. None of the residents in ourstudy mentioned ethical challenges connected to end-of-life care.Conclusion: Residents and relatives experience ethical challenges in Norwegian nursing homes, mostlyconnected to "everyday ethical issues."
机译:背景:疗养院居民是弱势群体。他们中的大多数患有多发病,而许多人患有认知障碍或痴呆症,需要全天候护理。科学文献中已经描述了疗养院中的一些道德挑战。大多数研究都是以职员作为知情者,有些研究集中在亲戚的观点上,但是缺乏关于居民观点的大量知识。目的:研究挪威养老院中的养老院居民及其亲属认为哪些伦理挑战。研究设计:A定性设计,对疗养院居民进行深入访谈,并与疗养院居民亲属进行焦点小组访谈。数字记录的采访是转录的。参加者和研究背景:来自挪威9个疗养院的25名疗养院居民和其中3个疗养院的18名疗养院居民亲属。伦理上的考虑:本研究已报告并获得批准。研究与讨论:从居民和亲戚的角度来看,挪威养老院的主要伦理挑战如下:(a)接受和适应;(b)幸福和美好生活; (c)自治和自决,以及(d)缺乏资源。与员工的关系是最重要的,既有收获又有麻烦。我们的研究中没有居民提到与临终关怀有关的道德挑战。结论:挪威的养老院中的居民和亲戚都遇到了道德挑战,其中大部分与“日常道德问题”相关。

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